ABSTRACT Objectives: to discuss the (in)visibility of children with special healthcare needs and their families in the Primary Health Care scenario. Methods: experience report about the difficulties faced by researchers from different regions of Brazil to locate children with special healthcare needs i...
OBJETIVO: identificar diagnósticos, intervenções e resultados esperados de enfermagem à criança com doença de Pompe, utilizando a Classificação Internacional para a Prática de Enfermagem® 2017. MÉTODO: estudo de caso realizado em dezembro de 2017, com uma mãe de criança com doença de Pompe....
ABSTRACT Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs. Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: char...
ABSTRACT Objective: to understand the experience of families about school experiences of children and adolescents with visual impairment. Method: a qualitative study developed through the Symbolic Interactionism and narrative research. Data were collected through a semi-structured recorded interview, w...
ABSTRACT Objective: To know how children with special health needs access the health care network. Method: This is a qualitative research of descriptive-exploratory type, developed using semi-structured interviews mediated by the Talking Map design. Participants were 19 family caregivers of these child...
Objetivo: avaliar e correlacionar o conhecimento teórico e prático dos técnicos de enfermagem sobre assistência de enfermagem à criança em terapia nutricional enteral. Método: estudo analÃtico, comparativo, realizado com 21 técnicos de enfermagem de um hospital terciário, especializado no atend...
ABSTRACT Objective: to understand the experience of families of children and adolescents with visual impairment with an emphasis on the adaptations made in daily life. Method: qualitative, research, which used as a theoretical reference the Symbolic Interactionism and analysis of narrative as method. D...
Cuidado del Niño,
Baja Visión,
Niños con Discapacidad,
Familia,
Interaccionismo Simbólico,
Investigación Cualitativa,
Trastornos de la Visión/diagnóstico por imagen,
Adaptación a Desastres,
Trastornos de la Visión/terapia,
AutonomÃa Personal,
Estigma Social,
Anteojos
ABSTRACT Objective: To identify the factors associated with family risk of children with special health care needs. Methods: Bicentric study, with a cross-sectional design and a quantitative approach, with family caregivers of children with special health care needs. Instruments were applied to obtai...
RESUMO Objetivo: avaliar a qualidade de vida relacionada à saúde de pacientes com câncer em cuidados paliativos e sua associação com aspectos sociodemográficos e clÃnicos. Método: estudo analÃtico, transversal, do qual participaram 127 pacientes. Foram utilizados instrumentos de caracterizaçÃ...