ABSTRACT Objective: To know how children with special health needs access the health care network. Method: This is a qualitative research of descriptive-exploratory type, developed using semi-structured interviews mediated by the Talking Map design. Participants were 19 family caregivers of these child...
ABSTRACT Objective: To understand the social support of families with tracheostomized children. Method: Qualitative study using the Model of Dimensions of Social Support together with the Family System-Illness model as theoretical frameworks, based on the hybrid model of thematic analysis. Nine familie...
Objective: The study’s main purpose has been to analyze the Brazilian scientific productions that used the Pediatric Evaluation of Disability Inventory (PEDI) in investigations focused on children diagnosed with disabilities. Methods: It is an integrative literature review which was carried out from Ju...
Objetivo: descrever o itinerário terapêutico de famílias de crianças com necessidades especiais de saúde.
Métodos: estudo qualitativo, realizado no domicílio de 14 famílias cadastradas na atenção primária à saúde.
Resultados: as famílias participantes relataram sentimentos negativos com a d...
ABSTRACT Objective: to understand the experience of families of children and adolescents with visual impairment with an emphasis on the adaptations made in daily life. Method: qualitative, research, which used as a theoretical reference the Symbolic Interactionism and analysis of narrative as method. D...
Cuidado del Niño,
Baja Visión,
Niños con Discapacidad,
Familia,
Interaccionismo Simbólico,
Investigación Cualitativa,
Trastornos de la Visión/diagnóstico por imagen,
Adaptación a Desastres,
Trastornos de la Visión/terapia,
Autonomía Personal,
Estigma Social,
Anteojos
ABSTRACT Objective: To describe the challenges of family caregivers of children with special needs of multiple, complex and continuing care at home. Methods: Qualitative study based on the theoretical framework of the Patient and Family-Centerd Care (PFCC). We interviewed eleven family caregivers from ...
OBJETIVO: Descrever as práticas relativas à higiene corporal da criança com encefalopatia no domicílio. MÉTODO: Estudo qualitativo desenvolvido pelo método criativo e sensível, com dados gerados de fevereiro a abril de 2014, através da dinâmica Corpo Saber, com cinco grupos...
ABSTRACT Objective: To investigate the relationship of family management with sociodemographic and physical dependence aspects of children and adolescents with neurological impairment. Method: Descriptive, cross-sectional study conducted at a child neurology center. A non-probabilistic sample was obtai...
RESUMO O artigo foi desenvolvido por enfermeiras com mais de cinco anos de atuação, em uma rede de hospitais de reabilitação no Brasil, referência em toda a América Latina. O objetivo do presente estudo é de relatar a atuação de enfermeiras na reabilitação de crianças e adolescentes com mielo...
Disrafia Espinal/enfermería,
Anomalías Congénitas/enfermería,
Enfermedades y Anomalías Neonatales Congénitas y Hereditarias,
Enfermeras y Enfermeros/normas,
Familia,
Hospitales de Rehabilitación,
Meningomielocele/enfermería,
Rehabilitación,
Cateterismo/enfermería,
Autocuidado,
Locomoción,
Enfermeras Especialistas,
Pautas de la Práctica en Enfermería,
Niños con Discapacidad/rehabilitación,
Servicios de Salud del Adolescente
ABSTRACT Objective: To identify the factors associated with family risk of children with special health care needs. Methods: Bicentric study, with a cross-sectional design and a quantitative approach, with family caregivers of children with special health care needs. Instruments were applied to obtai...
