Resultados: 4

Waves of family hope: narratives of families in the context of pediatric chronic illness

Objective: to analyze narratives about the experience of hope of families in the context of pediatric chronic illness. Method: a narrative research using Family Systems Nursing as a conceptual framework. Three families of children and adolescents diagnosed with complex chronic illness participated in th...

Protective and risk factors for women's mental health after a spontaneous abortion

Objective: to examine personal and contextual protective and risk factors associated with women's mental health after a spontaneous abortion. Method: a cross-sectional study was carried out where 231 women who had experienced spontaneous abortions in the past 4 years answered a self-reporting online q...

Priority needs referred by families of rare disease patients

Texto & contexto enferm; 25 (4), 2016
ABSTRACT Rare diseases cause strong impact in families and generate needs beyond those associated with the most frequent diseases. Some of these needs are the inclusion of new responsibilities and the relationship with the healthcare and social services. This study is aimed at identifying the priority ne...

Doenças raras: itinerário diagnóstico e terapêutico das famílias de pessoas afetadas

Acta paul. enferm; 28 (5), 2015
Objetivo: Caracterizar o itinerário diagnóstico e terapêutico realizado pelas famílias de pessoas com doenças raras, no âmbito da rede de serviços públicos brasileiros. Métodos Trata-se de pesquisa qualitativa. Utilizou-se a teoria bioecológica do desenvolvimento humano, de Urie Bronfenbrenner,...